This website was created as a place for our community to share well wishes, stay connected and informed on Felix and his family, as well as find out about needs and donation requests.
Felix is an 8 year old boy who was diagnosed with T-cell acute lymophoblastic leukemia (T-ALL) on December 19th, 2017.
T-ALL is a fast progressing type of cancer in which the bone marrow makes too many immature white blood cells.
The only symptoms that Felix had when he was diagnosed with leukemia were weight loss, wakefulness/restless sleep, and a funny sounding snore. He was literally playing hockey the day before. But on the 19th, Felix’s mom, Heidi, who is very intune with her kids’ health and mood changes, had a strange gut feeling that something was not right.
Heidi took Felix into the walk-in clinic on Nantucket and requested blood work and a chest X-ray to determine what might be causing his weight loss and sleeplessness. Initially the doctor only ordered blood work, but when it came back abnormal, they followed up on Heidi’s request for an X-ray. After the X-ray, a CT scan was ordered and they found a mass in Felix’s chest.
Within hours of feeling something was wrong and taking Felix to the clinic, Heidi was told that the mass was most likely lymphoma, and Felix was medflighted to Boston Children’s Hospital.
Felix’s first hospital visit lasted over a month as he began chemotherapy, but he is a champ! He’s taken all of it in stride, blood tests, lumbar punctures, and chemo, without complaints – except that he misses his brothers and sister, and home cooked meals.
The doctors have said that Felix is responding incredibly well to treatments and he should be back home on Nantucket soon. Once he arrives home, Felix will travel to Boston sometimes twice a week for chemo but more often once a week for chemo and other cancer related treatments making it difficult for both heidi and harris to keep a full time job.as many of the 1 day in Boston turns into 3 days due to Felix’s nausea and other side effects that makes traveling home not something Heidi or Harris wants to put Felix through when he’s feeling bad. He will also have to go to Boston for some lab work and procedures at the Jimmy Fund Clinic frequently, assuming he doesn’t get a fever or infection which then he would be Re admitted to children’s hospital for up to a week.
Felix’s treatment will last 2+ years and for the foreseeable future everything is up in the air, month to month, due to not knowing how Felix will react to the treatments. We’re hopeful that it was caught so early – doctors think that Felix’s leukemia hadn’t even been there for two weeks when he was diagnosed – and that he’s currently responding so well to treatments, but things can change in a minute. If he even gets a low-grade fever, Felix will need to be readmitted to Boston Children’s Hospital.
It will be a long road to recovery, and Felix, his family, and their close friends appreciate all your support during this time.
Felix & His Family